Activism Recap

 Posted by on 31 January 2010 at 2:00 pm  Activism Recap
Jan 312010
 

This week on We Stand FIRM, the blog of FIRM: Freedom and Individual Rights in Medicine:

This week on Politics without God, the blog of the Coalition for Secular Government:

Open Thread #134

 Posted by on 31 January 2010 at 12:00 am  Open Thread
Jan 312010
 

Here’s yet another Open Thread for your thoughts:

For anyone in the fiery grip of a random question, comment, joke, or link they’d like to share with NoodleFood readers, I hereby open up the comments on this post to any respectable topic. (Please refrain from posting personal attacks, pornographic material, and commercial solicitations.)

Thyroid Update: Desiccated Thyroid and Iodine

 Posted by on 30 January 2010 at 5:00 pm  Health, Personal, Thyroid
Jan 302010
 

After months of being lethargic, confused, fat, pained, and cold from my hypothyroidism, I’m finally on the mend! Although I’m not yet 100%, the turn-around was remarkable. Within just a few days, my worst symptoms of mental fog and lethargy were alleviated by rejecting the conventional treatment of synthetic T4 (e.g. Synthroid, levothyroxine) in favor of desiccated porcine thyroid plus high-dose iodine.

(Desiccated thyroid is dried pig thyroid; it contains the full range of natural hormones produced by the thyroid, not just T4. High-dose iodine means supplementing with 12.5 to 50 milligrams per day.)

When I was diagnosed as hypothyroid in early November, my TSH was only 3.23. That’s barely abnormal, but I was suffering from most of the standard symptoms of hypothyroidism. (TSH above 2.5 suggests hypothyroidism.) My doctor put me on 50 micrograms of Synthroid, a synthetic version of the T4 hormone. Two months later, in early January, my TSH was down to 2.28, but my symptoms were somewhat worse. Also, my Free T3 and Free T4 were the same, still on the low end of the middle range.

Undoubtedly, I could have increased my Synthroid, eventually reducing my TSH to my doctor’s target of around 1.0. Would I have felt any better at that point? Based on my experience on the drug for those two months — when my lab values improved but my symptoms worsened — I strongly suspect not. Instead, if I’d stayed on Synthroid, I likely would have been mentally and physically disabled for the rest of my life.

I’m not exaggerating. During those two months, I was unable to work, travel, or pursue any substantive projects. My weekly trip to the grocery store exhausted me, and I often couldn’t muster the energy to slowly walk around the pastures with Conrad. My IQ felt about 20 points lower; I could only think at a very surface level. I was most definitely not flourishing. My mind and body seemed to be slowly shutting down.

Sadly, that’s not an uncommon response to the standard regimen of T4-only medication. TSH might fall to normal levels, but the many debilitating symptoms of hypothyroidism remain. From what I’ve read in countless forums, too many doctors seem concerned only to treat the problem of high TSH, not the underlying problem of hypothyroidism. In particular, many doctors seem to ignore the fact that the body might not effectively convert the storage hormone T4 into the active hormone T3 — or that tissues might not effectively use T3. Many patients on synthetic T4 medication complain to their doctor about their persistently raging hypothyroid symptoms, only to be summarily dismissed. After all, if the TSH is normal, all those classic hypothyroid symptoms simply must be due to something other than a poorly functioning thyroid — like aging or poor diet or even hysteria. Or so they claim. (Such doctors equate hypothyroidism with elevated TSH, just as analytic philosophers equate concepts with definitions.)

The consequences of that mis-treatment are tragic. People suffer the degradation of living as a quasi-corpse for years and decades, unless they discover desiccated thyroid. (Or, in some cases, they suffer unless they find a way to return to desiccated thyroid, after some new doctor switched them from it to synthetic T4, often against their express wishes.) It’s heartbreaking to read these stories. I know that, without dedicated and tenacious people like Janie Bowthorpe of Stop the Thyroid Madness, I could have suffered the same fate. Instead, I got off pretty easy with only two months of living as a semi-corpse on Synthroid.

At the time of my diagnosis of hypothyroidism in early November, I was aware that Synthroid might not work for me. However, given that I developed my hypothyroidism at the very height of a government-induced shortage of desiccated thyroid, I was willing to try it. Well, I got my answer by early January: Synthroid didn’t do squat for me, except lower my TSH.

Happily, my excellent family practice doctor, Dr. Heble, was willing to switch me to one grain of desiccated thyroid, to see whether that might help. (One grain is the standard starting dose for desiccated thyroid, but it was an increase for me, based on this conversion chart.) By that time, I’d found a local source: Wise Compounding Pharmacy.

Just as I was making that switch from Synthroid to desiccated thyroid, I also began taking high-dose iodine, plus selenium. As I indicated in my first post on my hypothyroidism, I suspected that I might be deficient in iodine for three reasons.

  1. Seafood is the primary natural dietary source of iodine, but I hated it until my mid-20s, and even now, I don’t eat more than a serving per week.
  2. Nearby oceans supply the soil of the east and west costs with iodine, but I’ve lived in the “goiter belt” for the last decade.
  3. Then, perhaps tipping me over the edge, I switched from iodized salt to (low-iodine) sea salt when I began eating paleo in the summer of 2009.(I’ll say more on what I suspect about the origins of my hypothyroidism in another post, including its relationship to my lacto-paleo diet.)

Back in early December, I began cautiously supplementing with 150 micrograms of “Liqui-Kelp,” gradually increasing that to 600 micrograms over the next month. (150 micrograms is the government’s recommended daily allowance.) I never felt any positive results from doing that. However, during that time, I was reading about much, much higher doses of iodine — between 12.5 and 50 milligrams — as sometimes necessary for whole-body health, including improving thyroid function.

I was intrigued by that, but also very wary. Most doctors will say that milligram doses of iodine are dangerous. However, the claims of danger seem to be sketchy, seemingly based on poor-quality epidemiological studies. Plus, most people seem to be able to handle those milligram doses just fine, and many people see remarkable improvement on them. Also, from what I read in some standard medical sources, a person with a physically intact thyroid can handle that much iodine, but a person with a damaged thyroid (e.g. partly removed in surgery) will be unable to tolerate it. Also, some people with Hashimoto’s do great on iodine, but others don’t tolerate it well. So, with much trepidation, I decided to try milligram doses of iodine.

On Monday, January 11th, I began taking Iosol and Lugol’s, working my way up to about 16 milligrams by the end of the week — over 100 times the government’s RDA. I also began supplementing with 100 to 200 micrograms of selenium each day. (Selenium is essential for thyroid health, you probably don’t want to take iodine without it, and you definitely don’t want to take more than 400 micrograms per day. That upper limit seems well-established.)

(Note: I don’t have any special reason for doing both types of iodine, except my own confusion. Lugol’s — or the tablet form Iodoral — seems to be the preferred form, as it contains both iodine and potassium iodide. From what I’ve read, different tissues prefer those different forms. Iosol contains only iodine. The milligrams of iodine per drop for J.Crowe’s Lugol’s Solution is here.)

On Tuesday of that week, I began feeling better: I was able to run some errands, then attend Ari Armstrong’s “Liberty in the Books” economics discussion group. That amazed me, as doing both would have been impossible just a week before. Then, on Wednesday, I switched to the desiccated thyroid. Over the next few days, I felt amazingly better. My brain fog lifted, and my lethargy disappeared. I could think again! I could concentrate! I danced around the house, singing silly songs! I wanted to exercise again! I had energy to burn! Life was good again!

Most amazingly, within just a few days on the milligram doses of iodine, a 16-month bout of totally mysterious amenorrhea came to an end. (Sorry, TMI, I know… but it’s important.) I was totally floored; I never expected that kind of result, not so fast! By way of background, the problem started after I went off the birth control pill in October of 2008. My doctor did a battery of tests over the summer, but nothing seemed wrong, except that my estrogen levels were very low — like menopausal. Initially, we thought the problem was just that my reproductive system went dormant with the shock of going off the pill after about fifteen years of nearly continuous use. Once the hypothyroidism cropped up, my doctor wondered whether there might be some connection. Hypothyroidism is known to cause menstrual problems, albeit usually causing too-heavy periods. Now I wonder what my iodine deficiency did to my estrogen levels, if that’s what happened. (Oh, and I’m not the only one.)

Never in my life have I experienced such a dramatic turn-around in my health, mind, and mood as I experienced that week on iodine and desiccated thyroid. If I weren’t a intransigent atheist, I would describe it as a miracle. That’s what it felt like: I got my life back — I got myself back — in the span of just a few days.

However, I had an epistemic problem. Although I knew that the improvement began before I switched to desiccated thyroid, I wanted to sort out how much was due to the iodine supplementation versus the desiccated thyroid. So after three days on desiccated thyroid, I switched back to my old 50 microgram dose of Synthroid. I stayed on that for about five days — enough time to allow the T3 of the desiccated thyroid to fully clear from my system.

During that time on iodine plus Synthroid, I definitely felt a decline in my energy and mental function, although I was still significantly better than when on Synthroid alone. I was eager to get back to the desiccated thyroid, and I perked up again when I switched back to it. Interestingly, I’m going without iodine today and tomorrow, to prepare for an iodine loading test on Monday. I’m definitely feeling a fuzzy-headed today, perhaps due to that lack of iodine intake.

Overall, I would say that I was functioning at about 50% while Synthroid, at about 75% while on Synthroid plus iodine, and now I’m at about 90% with desiccated thyroid plus iodine.

Oddly, my symptoms are not all better. Instead, my body’s response has been somewhat mixed. My brain fog is gone, and my powers of memory and concentration are much better. I have tons more energy, such that I’m able to put in a day’s work. Overall, my mental function and energy levels should be about 10% better, I think. I’ve stopped gaining weight, but I’ve not yet lost any weight. My digestion is definitely better: I’m not chronically bloated, and I’m able to skip a meal without disaster. My carpal tunnel is somewhat better, but still bothering me somewhat. However, my body temperatures are still quite low, averaging about 96.5 F. My skin is still terribly dry.

I’m also able to exercise — but wowee, I am so out of shape! I’d been increasing sedentary for the last few months, such that I barely moved in December. Now I can exercise, but my muscles are shaky and then sore from even mild weightlifting. Also, I used to be unable to exert enough energy to get winded, but now my wind is the major limiting factor when I row on our rowing machine. That’s good!

Also, my goiter — the nodule in my thyroid — seems to have shrunk considerably. Before, I could feel a squishy spot on my neck, and I could see a slight bulge in the mirror. Now that’s all gone. I’ll have an ultrasound recheck in late March, and I expect good results from that.

I’m going to have another thyroid lab panel done in early March, and I expect that I’ll be increasing my desiccated thyroid dose to 1.5 grains then. Also, as I mentioned, I’m taking an iodine loading test on Monday. I’ll be very curious to see my results; I expect that I’m still iodine deficient, and that I can and ought to increase my daily dose, perhaps up to 50 milligrams per day for a few months. Paul — who has been supplementing with just the RDA of 150 micrograms for the past few weeks — will be taking his test when he can, likely next weekend. I’ll be very curious to compare my results with his.

I’ve come to wonder whether iodine might be like Vitamin D — in the sense that the miniscule amounts recommended by the government might be sufficient to ward off obvious illness — rickets, in the case of Vitamin D and goiter, in the case of iodine. Yet a much higher dose might be optimal. I’m definitely not recommending everyone start taking large doses of iodine. However, if you’re suffering from the symptoms of hypothyroidism, you might investigate iodine. And for everyone else, I recommend that you make sure that you obtain the recommended 150 micrograms per day.

Mostly though, I’d like to see some solid research and writing on the subject. While I’ve learned a great deal from the sources I’ve read, I’ve been frustrated by the inconsistent quality thereof. I’m not competent to dig up and read the primary sources in the medical literature: I’m purely a consumer of secondary sources. That makes me exceedingly nervous, as I know just how inaccurate secondary sources can be!

I have serious reservations about the scientific judgment of some of the sources I’ve read on iodine and hypothyroidism — even though I often found them fascinating and helpful. For example, Dr. David Brownstein wrote a fascinating little book on iodine — Iodine: Why You Need It, Why You Can’t Live Without It. (He’s also the author of Overcoming Thyroid Disorders.) His collection of articles on iodine (often co-authored) looked good too… until I got to the belligerent argument for young-earth creationism. Seriously. I don’t think that Brownstein is lying about the tests he’s done and the results he’s gotten, particularly given that others have reported similar results. Yet I simply cannot trust the medical judgment of someone who appeals to the Flood (!!) and Satan (!!) to explain why the soils of some inland areas are deficient in iodine.

Similarly, while I was super-intrigued by what I read in Dr. Mark Starr’s book Hypothyroidism Type 2, I was dismayed to read on his web site that he practices homeopathy and “energetic medicine.” I just can’t regard that as anything better than mystical quackery. The only bright side is that nothing in the book seems to depend on — or even hint at — those views, so perhaps that’s all separate from his views on hypothyroidism. However, once again, I simply can’t trust his medical judgment.

My basic approach is to take whatever seems grounded in good empirical science from these folks, then then integrate it with my own experience and reliable reports from others. Happily, I can strongly recommend one very practical book on hypothyroidism, namely Janie Bowthorpe’s Stop the Thyroid Madness. Mary Shomon’s book Living Well with Hypothyroidism also has some helpful suggestions, particularly for dealing with doctors unwilling to prescribe desiccated thyroid. And I’ve often found myself searching the archives of various Yahoo Groups, particularly Coalition for Natural Desiccated Thyroid, Natural Thyroid Hormones, and Iodine.

Also, I have some hope for Dr. Broda Barnes’ 1976 book Hypothyroidism: The Unsuspected Illness, but I’ll reserve judgment until that arrives from Amazon.

Mostly, I’m just desperate for a good, juicy blog post from Dr. Eades on the subject of hypothyroidism, desiccated thyroid, and iodine supplementation. He’s probably the only doctor (along with his excellent wife, MD) whose judgment I can fully trust on this topic. He’s got the deep knowledge of the relevant biology; he’s got the years of experience treating patients with hypothyroidism; and he’s got a good working epistemology.

Happily, Dr. Eades dropped some useful hints in the comments of a blog post on Oprah’s weight gain. He recommends an iodine loading test, plus Iodoral (12.5 to 50 milligrams) for people who are deficient. And he always used desiccated thyroid for his patients, not synthetic T4. I was so relieved to read that, as I felt like I was leaping about in the dark, particularly on the iodine.

So … Dr. Eades … will you write that blog post on iodine that you promised in those comments? Pretty please… with a deliciously tender sous vide meatball on top?

Update as of October 2013: I’ve been steady and doing well on 3 grains of desiccated thyroid since the middle of 2011. (That means that my TSH is nearly zero, but that’s the level required for decent levels of Free T3 and Free T4, plus the elimination of symptoms.) I’ve stabilized on 12.5 MG of iodine per day. I’ve found that my period gets wonky without that, and I’ve never suffered any ill effects from taking it.

Food-O-Rama

 Posted by on 30 January 2010 at 9:00 am  Food, Health, Link-O-Rama
Jan 302010
 
  • A handy flow chart for figuring out whether to eat the food that you just dropped on the floor.
  • Just because you’re slender doesn’t mean that you’re healthy. People who are “skinny-fat” might be at greater risk of heart disease. Drs. Mike and Mary Dan Eades discuss the problem of such visceral fat — and what to do about it — in their excellent recent podcast interview with Jimmy Moore.
  • Gretchen’s postprandial diet experiment reports on a fascinating 24-hour test of blood glucose and triglycerides on a high-carb/low-fat diet versus a high-fat/low-carb diet. The Heart Scan Doc has more on why these kinds of tests suggest that the hunter-gatherer mode of infrequent eating is healthier than the “grazing” that many people advocate.

    I’ve got a big thyroid update post to write, so look for that later today!

  • Multi-Track A Capella Lady Gaga

     Posted by on 29 January 2010 at 3:00 pm  Music
    Jan 292010
     

    Wow, I love the whole concept, and the choice of songs!

    Crawford Letter Opposing Reconciliation Trick

     Posted by on 29 January 2010 at 11:00 am  Activism, Health Care
    Jan 292010
     

    As mentioned earlier, ObamaCare may not be quite dead yet.

    If this report from HotAir.com is accurate, the Democrats will use the “budget reconciliation” technique to ram ObamaCare through Congress.

    Basically, the House has to first approve the Senate bill without changes. Then they would use the “budget reconcilation” technique to make changes in a pre-arranged deal to satisfy the various special interest groups. This only requires 51 votes in the Senate, not 60. This tactic is necessitated by the Scott Brown victory in Massachusetts which deprived them of their prior 60-vote supermajority.

    The good news is that several Democrat Senators have already expressed opposition to using this method. (Whether they actually vote against it is a separate issue). So the Democrats may only have just barely over 50 votes they can count on. Which means if 1 or 2 more Democratic senators decide to oppose this tactic, then it will fail.

    Hence, the important people to contact would be your two Senators, especially if they are Democrats.

    Here’s an example of a great letter that David Crawford sent to his Senators from Washington state (reposted with his permission):

    Senator XXX,

    I have heard news that there is a plan to pass the Senate version of the health care bill with modifications made through “budget reconciliation”, which requires fewer votes.

    None of this seems to be confirmed, so I don’t know what is true, but if there *is* such a plan, it seems to be a total subversion of the legislative process! Please do not support efforts that are obviously intended to force a major new set of laws and regulations on a people who are trying to make it clear that they don’t want it.

    The Massachusetts election was the latest of many efforts of voters to communicate that we do *not* support this massive intrusion into our health care. I believe the Senate bill was passed too early, without a real understanding of your constituents concerns.

    We all want better health care, but the proposed changes may have a devastating effect on the existing system, especially at a time when the economy is still very unstable. Please listen to what your constituents are trying to tell you and vote NO on any “budget reconciliation” efforts to get ObamaCare into law.

    Thank you,
    David Crawford

    If you agree with those views, please speak out!

    [Crossposted from the FIRM blog.]

    Jan 292010
     

    Back in December, Front Range Objectivism created a third FROG discussion group. 2FROG was just too large, and we’re trying to keep the FROG groups at about twelve plus/minus two people. I’ve opted to join 3FROG. Officially, that’s because I want to help steer this newer group in the right direction in my capacity as Overall FRO Leader. Honestly though, I’m not too worried about them. Mostly I’m just enthused to spend some time discussing Objectivism with some of the newer folks in FRO.

    3FROG just began Ayn Rand’s anthology on aesthetics, The Romantic Manifesto. I’m pleased by that choice, as that covers a great deal of material that I’m just not terribly familiar with. More particularly, the essays often concern more psychological issues — like sense of life and emotions — that clearly bear on my own deep interest in Aristotle’s moral psychology.

    On Saturday, I lead the discussion on the second essay, “Philosophy and Sense of Life.” Here are questions that I posed to the group.

    • What is sense of life? How is it formed? How does it function in a person’s life? How does it relate to a person’s explicit philosophic principles? How does it relate to psycho-epistemology?

    • How does a person identify his own sense of life? Why and how might that be difficult? What might be some clues? What is my own sense of life?
    • Can a person change his sense of life? Why might he want to do so? How might he do so? Why might that process be difficult or even unpleasant? How might a person psychologically retrain himself?
    • How can a person learn to better identify the sense of life of other people he knows and meets? Why and how might that be important?

    What would you say in answer to those questions? They seem simple, but they’re actually quite involved! We discussed them for quite a while in 3FROG, and I’m happy to say that I have a better grip on the topic now than when I read the essay last week. As for my own answers, that will have to wait for some future day.

    Photo Du Jour: Conrad

     Posted by on 28 January 2010 at 4:00 pm  Animals, Personal, Photography, The Beasts
    Jan 282010
     

    (26 January 2010)

    Objectivist Roundup

     Posted by on 28 January 2010 at 1:00 pm  Objectivist Roundup
    Jan 282010
     

    Rational Jenn has the latest edition of the Objectivist Roundup. Go check it out!

    The Christian Ideal: Suffering

     Posted by on 28 January 2010 at 8:00 am  Ethics, Politics, Religion
    Jan 282010
     

    Crossposted from Politics without God.

    I’m simply overwhelmed to read Tony Judt’s account of a single night stuck in the prison of his body, ravaged by ALS (a.k.a. Lou Gherig’s disease). Here’s how he describes his basic condition:

    By my present stage of decline, I am thus effectively quadriplegic. With extraordinary effort I can move my right hand a little and can adduct my left arm some six inches across my chest. My legs, although they will lock when upright long enough to allow a nurse to transfer me from one chair to another, cannot bear my weight and only one of them has any autonomous movement left in it. Thus when legs or arms are set in a given position, there they remain until someone moves them for me. The same is true of my torso, with the result that backache from inertia and pressure is a chronic irritation. Having no use of my arms, I cannot scratch an itch, adjust my spectacles, remove food particles from my teeth, or anything else that–as a moment’s reflection will confirm–we all do dozens of times a day. To say the least, I am utterly and completely dependent upon the kindness of strangers (and anyone else).

    Please, go read the whole thing. While I don’t know what Mr. Judt’s own religious views are, I regard his life as a clear demonstration of the life-hating brutality of Christian doctrine. To wit:

  • Christianity regards suffering like that of Mr. Judt as not merely noble and elevated, but positively divine. It’s not good to live fully, happily, robustly according to Christianity: it’s good to suffer and die. That’s what Jesus taught — and then he lived and died by that ideal.
  • Christianity regards the body as a vile, despicable prison that leads a person’s divine soul astray into the dark depths of sin. Mr. Judt is positively lucky, as his body really is a prison: he cannot indulge pleasures of the flesh, not even the seemingly minor ones like scratching his own itches.
  • Christianity regards Mr. Judt’s life as God’s property, not as his own. So Mr. Judt must be forbidden by law from ending his own life, if and when it becomes intolerable. If anyone attempts to help him end his life, that person should be imprisoned as a murderer. As a bonus, if Mr. Judt manages to end his own life somehow, the loving Christian God will consign him to the torments of hell for all eternity.

    Of course, many Christians do not live by such dark principles. They are kind, decent people, loathe to see anyone suffering from such a tragic condition. They might even support stem-cell research, and even assisted suicide. To that extent, their values are more American — loving science, seeking happiness, and upholding individual rights — than Christian.

    As Leonard Peikoff states in his essay Religion Versus America:

    It is time to tell people the unvarnished truth: to stand up for man’s mind and this earth, and against any version of mysticism or religion. It is time to tell people: “You must choose between unreason and America. You cannot have both. Take your pick.”

    If there is to be any chance for the future, this is the only chance there is.

    Amen, brother!

  • Suffusion theme by Sayontan Sinha